Upcoming Events

Dystonia Support Group of Greater Washington DC

Meetings Scheduled for 2019

March 3, 2019

May 19, 2019

September 15, 2019  All day conference

November 17, 2019

Location: Holy Cross Hospital, 1500 Forest Glen Road, Silver Spring, MD 20910-1484 (301) 754-7000

When:  Informal social starts at 12:30PM, Program starts at 1:00PM



Dystonia Support Group of Greater Washington DC

Support Group Meeting

Location: Holy Cross Hospital, 1500 Forest Glen Road, Silver Spring, MD 20910-1484 (301) 754-7000

When: March 3rd, 2019  Informal social starts at 1:00 PM, Program starts at 1:30PM Please note the change in start time.

1:00—1:30   Sharing our dystonia journeys

1:30—1:45   Announcements—Sally Presti

1:45—2:30   Dr. Zachery Levine and Dr. Stephen Grill  will discuss Deep Brain Stimulation (DBS) surgery, the new devices available, the new technologies which offer hope for those not responding to medication and Botulinum toxin injections and what to expect after DBS surgery.

2:30—2:45   Dr. Stephen Grill—Question and Answer Period

2:45—3:00   A Farewell Tribute to Sally Presti

3:00—3:30   Core group planning session.  All are invited.

Speakers:  Dr Zachery Levine is a board-certified neurosurgeon and Fellow of the American Academy of Neurological Surgery. He has advanced training in cranial base surgery and stereotactic/functional surgery for movement disorders and epilepsy. In addition, he has extensive experience in Deep Brain Stimulation (DBS), image-guided, computer-assisted microsurgery, minimally invasive spinal surgery and artificial disc replacement. He is the Director of Neurosurgery and Neurosciences at Holy Cross Hospital. In the constantly innovating field of neurosurgery, Dr. Levine keeps up. He was the first to perform minimally invasive brain surgery using the BrainPath system in the metropolitan D.C. region. And has been a leader in the neuromodulation/DBS community worldwide. Dr. Levine proctors other surgeons performing DBS, locally and internationally. He is a key opinion leader on the topic and served on the technical advisory board of the company that makes the only DBS devices approved for use by the FDA.

A graduate of Dartmouth College, Dr. Levine completed medical school at New York University School of Medicine in the honors program. He did his residency in neurological surgery at the George Washington University Hospital. Dr. Levine has taught cranial base surgical approaches at national meetings. He collaborates with the National Institutes of Health, Medical Neurology Branch. His clinical research in skull base surgery, cerebrovascular surgery, and functional neurosurgery has been published in peer-reviewed journals and textbooks. He patented a technique for cellular transplantation in neurodegenerative diseases and movement disorders.

He is also an alumnus member of the Osler Society. His efforts in neurosurgery have been recognized by induction into the Alpha Omega Alpha Medical Honor Society. He has received both the Singer and Resident research awards for his original clinical research in neurosurgery. The Dystonia Association awarded Dr. Levine their Humanitarian Award in 2010 for his efforts in the treatment of dystonia.

Stephen Grill, MD, PhD is co-founder of the Parkinson’s and Movement Disorders Center of Maryland, a freestanding clinic established in 2005. He has specialized in treating movement disorders since 1995. His research interests concern how use of sensory information and feedback may improve motor functioning in persons with Parkinson’s disease and other movement disorders.

He received his PhD in Neuroscience from Northwestern University, Evanston, Illinois, and his MD also from Northwestern University at the Chicago campus. He completed his Neurology Residency at Washington University in St. Louis, Missouri, and a fellowship in Movement Disorders at the Human Motor Control Section of the National Institute of Neurological Disorders and Stroke of the National Institutes of Health, Bethesda, Maryland. Dr. Grill is currently an Assistant Professor at Johns Hopkins University (JHU) in Baltimore and Chair of the Medical Advisory Board of the Parkinson Foundation of the National Capital Area (PFNCA).  In addition to his professorship at JHU and his PFNCA chairmanship, Dr. Grill participates in additional leadership roles, including Medical Advisor for the Greater Washington Support Group of the Dystonia Medical Research Foundation, and Medical Advisor for the Howard County Chapter of the National Ataxia Foundation.  He is a member of the Society for Neuroscience and the Movement Disorder.   He is the recipient of the Patients' Choice Award (2017, 2018). Patients' Choice recognition reflects the difference a particular physician has made in the lives of his/her patients. The honor is bestowed to physicians who have received near perfect scores, as voted by patients.