49days until
Advocacy Day

48days until
Next Support Group Meeting

Upcoming Events

 
2010 Support Group Meetings
 
March 7, May 2, September 19, November 14,
at Holy Cross Hospital, Silver Spring, MD
Generally starting at 12:30PM
Speakers and agenda to be announced at the Meeting Notices section of this website
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2010 Advocacy Day

posted Jan 15, 2010 5:41 PM by Pat Price   [ updated Feb 23, 2010 3:46 PM ]

May 4-5, Washington DC
St. Gregory Hotel and Capitol Hill

  Each Spring, dystonia advocates from around the country come together on Capitol Hill. After a day of advocacy training and briefings on the issues, they meet with legislators on Capitol Hill to educate them about dystonia and to inform them of how they can assist the dystonia patient community.  This is a unique opportunity that should not be missed.  To register for Advocacy Day, call Sally Presti on 301-627-1657.  You can also register online for Advocacy Day at  

http://www.dystonia-foundation.org/pages/advocacy_day_2009/476.php.   For more information, call Sally Presti or call or email Dane Christiansen, at 800-377-DYST (3978) or dchristiansen@dystonia-foundation.org.

DC Metro Area Spasmodic Dysphonia Support Group

posted Nov 22, 2009 10:24 AM by Pat Price   [ updated Feb 23, 2010 4:19 PM ]

The group's  2010 meeting calendar is as follows:
 
Wed, March 10
Wed, June 9        
Wed, Sept 15
Wed, Dec 8
 
The group meets from 6:15 - 8:15 pm at the George Washington University Medical Center / School.  All are welcome, but it is necessary to RSVP to (
loismjackson@hotmail.com) at least a week in advance of the meeting date.
 

Baltimore/ Johns Hopkins Dystonia Support Group

posted Jun 11, 2009 11:06 AM by Pat Price   [ updated Feb 23, 2010 4:20 PM ]

 This group meets at the Outpatient Center, Room 2140, 601 N. Caroline St., Baltimore, MD.  Please email June Sumner at sumdmj@aol.com for additional information or call her, 410-519-1050.

All meetings are on the following Saturdays from 1:30-3:30PM:  

April 17, July 17, October 16.
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posted Mar 29, 2009 6:31 PM by Roberta Senzel   [ updated Nov 22, 2009 10:38 AM by Pat Price ]

 

posted Mar 29, 2009 6:29 PM by Roberta Senzel   [ updated Nov 22, 2009 10:41 AM by Pat Price ]

 

posted Mar 29, 2009 6:28 PM by Roberta Senzel   [ updated Nov 22, 2009 10:42 AM by Pat Price ]

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