Support Group of Greater Washington DC

Dystonia Conference 2014

 Sunday, November 16, 2014

8:30 AM—4:00 PM

Holy Cross Hospital     1500 Forest Glen Road     Silver Spring, MD

 

NO CHARGE &  LUNCH  IS  INCLUDED           Pre-registration requested

 

Schedule & Speakers  (subject to change)

 

8:30 am                       Registration Opens

 

9:00 to 9:15 am          Welcome

                                      Virginia Foster, Planning Committee Chairperson

 

9:15 to 10:00 am        What is this Thing Called Dystonia and How is it Treated?  

                                      Stephen Grill, MD, PhD

 

10:00 to 10:45 am      DBS – What to Expect After Surgery            

                                       Zachary Levine, MD

 

10:45 to 11:00 am      Break  

 

11:00 to 11:30 am      Treatment Discussion – Q & A with Panel  

 

11:30 to 12:15 pm      Dystonia Research – An Update   

                                       Jan Teller, MA, PhD

 

12:15 to 1:30 pm        Lunch (grouped by topic or form of dystonia)

  

1:30 to 2:30 pm          Clinical Trials – The Importance of an Informed Participant  

                                       Jamie Roberts, INSPIRE Coordinator, NINDS, Paula Schneider Trial Participant

 

2:30 to 2:45 pm          Break  

 

2:45 to 3:30 pm          Dystonia Management – Developing a Strategy for Your Dystonia

                                     Barbara Benton, Sally Presti and Hunter Webster

 

3:30 to 3:55 pm          Getting Involved – Sharing Your Story to Battle Dystonia 

                                      Kathy & Melissa Rentfrow

 

3:55 to 4:00 pm          Concluding Remarks

                                      Virginia Foster, Planning Committee Chairperson

 

To register online, please go to:  www.dystonia-foundation.org/dcconference

 To register by phone, please call DMRF at 800-377-DYST (3978)

 

For more information, please contact Sally Presti at 301-627-1657