Support Group of Greater Washington DCDystonia Conference 2014Sunday, November 16, 2014 8:30 AM—4:00 PMHoly Cross Hospital 1500 Forest Glen Road Silver Spring, MD
NO CHARGE & LUNCH IS INCLUDED Pre-registration requested Schedule & Speakers (subject to change)
8:30 am Registration Opens
9:00 to 9:15 am Welcome Virginia Foster, Planning Committee Chairperson
9:15 to 10:00 am What is this Thing Called Dystonia and How is it Treated? Stephen Grill, MD, PhD
10:00 to 10:45 am DBS – What to Expect After Surgery Zachary Levine, MD
10:45 to 11:00 am Break
11:00 to 11:30 am Treatment Discussion – Q & A with Panel
11:30 to 12:15 pm Dystonia Research – An Update Jan Teller, MA, PhD
12:15 to 1:30 pm Lunch (grouped by topic or form of dystonia)
1:30 to 2:30 pm Clinical Trials – The Importance of an Informed Participant Jamie Roberts, INSPIRE Coordinator, NINDS, Paula Schneider Trial Participant
2:30 to 2:45 pm Break
2:45 to 3:30 pm Dystonia Management – Developing a Strategy for Your Dystonia Barbara Benton, Sally Presti and Hunter Webster
3:30 to 3:55 pm Getting Involved – Sharing Your Story to Battle Dystonia Kathy & Melissa Rentfrow
3:55 to 4:00 pm Concluding Remarks Virginia Foster, Planning Committee Chairperson
To register online, please go to: www.dystonia-foundation.org/dcconference To register by phone, please call DMRF at 800-377-DYST (3978)
For more information, please contact Sally Presti at 301-627-1657 |
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