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DOD ACTION ALERT URGENT

posted Jul 28, 2012, 3:03 PM by Elena Nacamuli

Dear Dystonia Advocacy Network Advocate,

Pursuant to our work in May, below is an Action Alert – asking us to contact our Senators before Tuesday when the Senate Defense Appropriations Subcommittee will take action on its recommendations for the Peer-Reviewed Medical Research Program.  Thank you for your efforts with this. 

 

ACTION ALERT – CONTACT YOUR SENATORS TODAY TO KEEP DYSTONIA

ELIGIBLE FOR DEFENSE MEDICAL RESEARCH

 

On July 31st, the Senate Defense Appropriations Subcommittee is considering whether to maintain dystonia as a condition eligible for study in the Defense Peer-Reviewed Medical Research Program in fiscal year 2013 (FY13). This program is critical to developing a better understanding of the mechanisms connecting trauma and dystonia. Please call your Senators’ Washington, DC office and tell them the importance of maintaining dystonia as a condition eligible for study in the DOD Peer-Reviewed Medical Research Program in the FY13 Defense Appropriations bill.

 

Information on your Senators’ Washington, DC office can be found by entering your zip code in www.congress.org and then clicking on the links to your Senators. Below are suggested talking points.

 

Tips for communicating with congressional offices:

 

1)    Identify yourself as a constituent and ask to speak with the legislator’s Healthcare Legislative Assistant.

2)    Tell the aide that you are a member of the Dystonia Advocacy Network (DAN).

3)    Ask that the legislator support dystonia research. Ask that she/he call the Senate Defense Appropriations Subcommittee and request that dystonia be maintained as a condition eligible for study in the Peer-Reviewed Medical Research Program.

4)    Briefly explain why these issues are important to you. Explanation could include:

·        There is a well-documented link between trauma, such as that experienced by military personnel in war zones, and dystonia.

·        Research is critical to improving the quality of life of those affected.

5)    Give the aide your contact information and ask to be informed about the actions the legislator takes in response to your request.

 

Suggested talking points:

 

·        I’m a constituent from [CITY, STATE]. I am a member of the Dystonia Advocacy Network.

·        Please have the Senator contact the Senate Defense Appropriations Subcommittee and ask them to maintain dystonia as a condition eligible for study in the Defense Peer-Reviewed Medical Research Program for FY13.

·        There is a well-documented link between trauma, such as that experienced by military personnel in war zones, and dystonia.

·        Research is critical to improving the quality of life of those affected.

·        [Briefly describe your dystonia story]

·        Please keep me informed of the actions the Senator takes to include dystonia in the Defense Peer-Reviewed Medical Research Program by contacting me at [email or phone].

 

Calling works best but you can also send an email with a similar message:

 

                Dear Senator,

 

I’m a constituent from [CITY, STATE]. I am a member of the Dystonia Advocacy Network. I write to urge you to take swift action in support of dystonia research by contacting the Senate Defense Appropriations Subcommittee and asking them to maintain dystonia as a condition eligible for study in the Defense Peer-Reviewed Medical Research Program for FY13.

 

There is a well-documented link between trauma, such as that experienced by military personnel in war zones, and dystonia. Research is critical to improving the quality of life of those affected.

 

[Briefly describe your dystonia story]

 

Please keep me informed of the actions you take to include dystonia in the Defense Peer-Reviewed Medical Research Program by contacting me at [email or phone].

 

Thank you,

 

[Your name]

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